Joslin Blog Project: Changes

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These wonderful bloggers are working together to raise money for Joslin’s High Hopes Fund, by writing one post per week for the Project during November, National Diabetes Month. They are showing their dedication to helping Joslin find the best treatments and continue research towards a cure. You can contribute by visiting the Joslin Blog Project fundraising website.

Check out this week’s series of posts by clicking “continue reading” below!

This week’s topic is: Changes: What were the biggest changes you went through after diagnosis, and what were (if any) small things you didn’t realize would change?

Baseball, Boston, and Bloodsugar

“As you can probably notice by now, I have a very positive view about my condition and these negative changes do not phase me at all. This fact may stun some people, but the reason for this is because my diagnosis was one of the best things that has ever happened to me in my life. Some people may be scratching their heads but let me explain. My whole life I have been interested in health care. My mom is a nurse and as is my grandmother and I knew since a very young age that I wanted to do something in that field…”
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“The changes I remember most after initially being diagnosed with diabetes revolve around food. All of a sudden food took on a whole new meaning. Food was no longer about being both tasty and nutritious – It was so much more that that. As an 8 yr old who was put on a 2500 calorie a day diet after being diagnosed with diabetes because I’d lost so much weight, food became both a challenge and a chore, weighed out and measured in precision like portion and served out 6 times a day.”
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One Third of a Muffin

“The biggest changes are felt immediately when you’re diagnosed with Type 1 diabetes. Obviously, injections and the finger pricks were a big change, but there were two things that really stick out in my memory as being the biggest changes.”
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Texting My Pancreas

“I’m told that when I was asked what I missed about life before diabetes, my six-year-old self replied, ‘Macaroni and cheese. I want more of it.'”
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“When I was diagnosed with Type 1 at age 11, it wasn’t only my life that changed.  My parent’s life changed, and I suppose my younger brother’s did too.  Diabetes affects not only the person diagnosed, but those who  love them as well.  But honestly, it’s been so long (32 years and 11 months) that I really don’t think about those changes anymore.   This is the life I have, and personally I do  much better if I don’t compare life before to life after.

However, there are some changes that I love to think about, because they give me hope and keep me going when things get tough.”
Continue reading…


One Response to Joslin Blog Project: Changes

  1. Jill Johnson RN says:

    I’d been an RN for 10 years when I was diagnosed, and had NO clue how little I knew. I was used to the ‘cookbook’ sliding scale insulin doses, and while I didn’t need any meds or insulin for 12 years, I still had a lot to learn between diagnosis and starting meds, then insulin. I also hadn’t been taught that diabetes was progressive- insulin wasn’t ‘failure’.

    Just going to the store during those early days on insulin were tricky- having lows in the 40s in the check out line, grabbing a Coke before paying for it while testing on top of the shopping cart- and waving my wallet around to indicate I’d pay for the Coke !

    The changes during chemo for leukemia also have changed my diabetes management a LOT. I didn’t expect that. I’m still getting that sorted out.

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